Contact Information


The Lejeune Clinics Are Held At

London Children’s Practice

1A Queripel House
Duke of York Square
Sloane Square
London
SW3 4LY


Registered Charity No. 1063847

Email: Enquiries@lejeuneclinic.com
 

Directions

Queripel House is next door to Partridges, a large delicatessen, and opposite the Saatchi gallery.

The nearest tube station is Sloane Square. Several bus routes run through Sloane Square - 11, 19, 22, 137, 170, 211, 319, 360, 452 & C1.

Parking is available at a pay-as-you-go car park in Cheltenham Terrace. Meter parking is available in St Leonard's Terrace, Turks Row and further down Cheltenham Terrace. There is also residential parking at Chelsea and Kensington.
 

Payments

The sessions are subsidised by the Lejeune Clinic for Children with Down Syndrome but do still require parental contribution (See Clinic Costs page). 

Appointments must be paid for in advance of the session to confirm a place: payment details will be provided on confirmation of your booking.
 

Cancelling Appointments

Appointments must be cancelled more than 48 hours before the appointment.
 

If you wish to cancel your appointment, email  Cancellations@lejeuneclinic.com
 

If the appointment is not cancelled within this timeframe, you will be liable to pay the full cost of the appointment.
 

Please be aware that the clinic is not able to help with medical emergencies – for these you should contact NHS 111, your GP or local Accident & Emergency department.

Facebook

Professor Jérôme Lejeune


His Life, His Commitment

A Doctor by vocation, Jérôme Lejeune was confronted with the struggles experienced by children with Down syndrome and their families. As medicine was powerless to help these children, Jérôme Lejeune decided to dedicate his life to them. He became a researcher with the aim of understanding the mystery of the condition and bringing awareness to the challenges they face.

The Discovery of Trisomy 21

In 1958, while working in Professor Turpin’s laboratory, Dr Jérôme Lejeune discovered the genetic cause of what was then known as Mongolism: an extra chromosome in pair 21. On 26th January 1959, the Academy of Science published his scientific work (Jérôme Lejeune, Marthe Gautier and Raymond Turpin. Human chromosomes in tissue culture. C. R. Acad. Sciences, 26th January 1959).  This condition would henceforth be called Trisomy 21.

For the first time in the world, a link had been established between an intellectual disability and a chromosome abnormality. Parents of children with Down syndrome could now know that their children’s’ condition was not hereditary. He later discovered the cause of many other chromosome abnormalities, thereby opening the way to cytogenetics and modern genetics.

Heading the Cytogenetics Unit at the Hospital Necker- Enfants Malades in Paris, his consultations became among the most sought after in the world. Helped by his co-workers, he investigated over 30,000 chromosome cases and treated more than 9,000 persons with these conditions.

His utmost concern was to one day succeed in healing the maladies of the patients who came to see him from around the world. He showed the personhood of his patients, and reminded us that as a civilization we must always seek to protect our most vulnerable members.

A Life Long Commitment

Although the results of his research should have helped medicine to advance towards a cure, they are often used to identify children carrying these conditions as early as possible, usually with the aim of terminating pregnancy.

Lejeune was propelled to the forefront of advocating for the protection of the unborn with Down syndrome. He gave hundreds of conferences and interviews across the globe in defense of life. He died of cancer on the 3rd of April 1994, Easter morning, thirty-three days after his appointment.
 

Professor Lejeune’s work continues today with his triple mission of;
 

Care, Advocacy and Research

Biographical Milestones

Jérôme Lejeune was born in 1926 in Montrouge, a Parisian suburb.

He studied medicine and became a researcher in 1952, eventually becoming an international expert for France on atomic radiation.

In July 1958, during a study of chromosomes of a child with Down syndrome, he discovered the existence of an extra chromosome on the 21st pair. For the first time, ever, a link was established between a state of an intellectual disability and a chromosomal anomaly.

In 1962, his extraordinary discovery was awarded the Kennedy Prize which Jérôme Lejeune received personally from President John F. Kennedy.

In 1964, the first Chair of Fundamental Genetics was created for him at the Faculty de Medicine de Paris. He started speaking at thousands of conferences around the world whilst still working and treating children and their families.

In 1969, his work on chromosomal pathologies was awarded the William Allen Memorial Award.

In 1974, he became a member of the Pontifical Academy of Sciences.

In 1981 he was elected to the Academy des Sciences Morals and Politics.

In 1983 he joined the Academy Nationale de Medicine. He was an honorary doctor, a member and laureate of many international Academies, Universities and scholarly societies.

In 1993 he received the Griffuel Prize for his pioneering work on chromosomal anomalies in Cancer.

In 1994 he was named President of the Pontifical Academy for life.

He died on 3 April 1994. In 2007 the case for beatification of Jérôme Lejeune was opened by the Roman Catholic Church.

Welcome to The Lejeune Clinic


Early Intervention clinics for babies and children with Down syndrome


The Lejeune Clinic runs Speech & Language and Occupational Therapy for babies and children with Down syndrome


Our Clinics focus on developing the child’s language and communication as well as their physical development. The sessions provide interventions with advice and recommendations for parents and carers on how to help their child with their next stage of development together with practical skills and activities which can be incorporated into their everyday lives.

This shared intervention is proven to have excellent outcomes for the children and enables parents to learn more about their child’s condition and how to practically help them and give them the best start in life. 
 

We run small group sessions including –


Early Intervention Groups, Baby Groups & Buddy-Up Sessions.

All our Clinics combine practical therapy with observations, advice and discussion.


We offer subsidised rates for our clinics so that all families can attend. Our service aims to supplement NHS therapy services. We are based in London’s Sloane Square and are open to all families across England and Wales.
 

Next Clinic Sessions

We run our Clinics on weekends so both parents can attend.
 

Book Now for Our Next Clinic:

29th June 2019


Please Fill Out the Enquiry Form Below

Alternatively, Contact Us at Sessions@lejeuneclinic.com


Please Note: New families need to fill out the Referral Form before a booking can be made.


Click here to fill out the Referral Form.

Clinic Dates Enquiry Form


Contact Information


Clinics Date Information

Please select the type of session you would like to attend.


“...A great source of intensive and tailored advice on both learning development and physical development. Great practical advice, useful materials to use at home and ideas for how to continue development.”


Speech & Language Therapy (SLT) and Occupational Therapy (OT) are proven to have hugely beneficial effects on the progress and development of children with Down syndrome. Our targeted sessions are run jointly by two specialist therapists in SLT & OT. Parents are invited to join the sessions to learn about the practical activities that can be incorporated into their child’s everyday life.
 

Funding

The valuable service we provide is heavily subsidised and we survive purely from financial donations and fundraising from the generosity of our supporters. If you can help by either donating to the charity or organising a fundraising event, 

Contact Us at  Funding@lejeuneclinic.com
 

Can You Tell People About Us?

Most of our referrals are via this website or word of mouth. If you know a family who might benefit from our services, please let them know.

You can also download copies of our posters for distribution in your community by clicking on the images below.

The poster has been designed to be printed on A5 paper. 
Make sure you have the paper size set to A5 in your printer's settings.

Thank you!

 

Further Links


Useful Resources

Websites

When your child was born you joined a network of committed and positive parents.

There are many organisations and support groups that you can approach for information and advice.
 

The Down Syndrome Association

The Down Syndrome Medical Interest Group

Down Syndrome Education International

Down Syndrome Research Foundation

The Makaton Charity

 

Support Groups

Positive About Downs

21&Co

Downright Excellent

 

Facebook Support Groups

Future Of Downs

Wouldn't Change A Thing

 

Recommended Reading

Supporting Positive Behavior - David Stein

Teaching Children to Read - Pat Oelwein - series of Books Woodbine House

Because I Am - Redemptorist Publications

Good Children - Lynette Burrows - Fisher Press

Tell It Right

Below is a link to our poster about Language Awareness for children with Down Syndrome. It contains useful information about talking about Down Syndrome.

If possible, please do print copies of the poster and share them with your community.

The poster has been designed to be printed on A4 paper. 
Make sure you have the paper size set to A4 in your printer's settings.

Thank you!

 



Lejeune Clinic
Language Awareness Poster

Advocacy Videos


My Dear Dad

Dear Future Mum

How Do You See Me?

Being Different, It's Normal

50 Mums, 50 Kids, 1 Extra Chromosome

Therapy Sessions


Our Range of Clinics

The Lejeune Clinic provides combined Speech & Language and Occupational Therapy sessions for children with Down syndrome


We provide a range of Clinics which especially focus on Early Intervention therapy. We have specialist therapists and support children and parents from birth up to 18 years old.

We run Baby Groups, Early Intervention Groups and Buddy-Up Sessions which combine; practical therapy, observations and discussion.

We run our Clinics on weekends so both parents can attend
 

Book Now for Our Next Clinic:

29th June 2019

Please Fill Out the Enquiry Form Below


Alternatively, Contact Us at Sessions@lejeuneclinic.com

Please Note: New families need to fill out the Referral Form before a booking can be made.

Click here to fill out the Referral Form.

Funding

Our charity relies solely on public donations and fundraising. Our fees are highly subsidised to enable all families to attend the therapy sessions and we therefore ask that if you can pay more for your sessions, to please give a donation beyond the suggested charitable rates to help to sustain the provision of this service both to you and others needing us.

Alternatively, if you are struggling to meet costs, please contact us and we will endeavor to assist you.

Clinic Dates Enquiry Form


Contact Information


Clinics Date Information

Please select the type of session you would like to attend.

Clinic Costs

Baby Group

Suitable for infants from birth until 2 years old
 

Subsidised Cost

£25 for one child per session


Our Baby group provides semi-structured therapies targeting early development, positioning and communication.

Click here for more information
 

Early Intervention Groups

Suitable for children from 2 – 6 years old
 

Subsidised Cost

£40 for one child per session


The EIG's focus on developing speech & language, attention, listening, social communication, turn taking and physical development including toilet training. This combined therapy support really helps give the best opportunity for each child’s progress.

Click here for more information
 

Buddy-Up Sessions

Suitable for children from birth until 18 years old
 

Subsidised Cost

£60 for one child per session


This Clinic consist of two children sharing the session with 1:1 therapy with each therapist. From a pre-session discussion, a therapeutic programme is tailored to meet each individual’s needs that can be put in place at home, at their nursery or at school as appropriate.

Click here for more information

Baby Group

Our Baby group consists of semi-structured therapies targeting early development, positioning and communication. The focus is on providing practical advice and activities that can be built into everyday life with opportunity for discussion with other parents too.
 

“The therapists are really at the forefront of what we can do, and incredibly helpful and supportive...,”

 

Families can book a place at each session if there are available spaces.

Click here to fill out the Referral form

Early Intervention Group

In our Early Intervention Group’s (EIG’s), we place similar-ability children together for the sessions. Our SLT & OT assess your child and give advice with recommendations and ideas to improve skills and support progress with the next stage of development. The sessions focus on practical activities which parents & carers can incorporate into their everyday lives. The assessment activities are designed to obtain a true reflection of the child’s communication skills & physical needs and for the younger children, they are play-based and fun, with the child unlikely to be aware that they are being assessed.
 
The therapy is designed to be supportive and is expected to be ongoing with follow-up appointments every three to four months to maintain steady progress under expert eyes. At the end of the sessions parents receive a written summary of the work covered in the sessions, with the targets and recommendations for further work at home. The EIG’s are an ideal way to meet other families for support and advice too.
 

“We have found the sessions to be very useful in providing clear recommendations for working with our son in order to help him to develop his speech and communication skills, fine and gross motor skills and cognitive development.”


Families can book a place at each session if there are available spaces.

Click here to fill out the Referral form

Buddy-Up Sessions

The Buddy sessions consist of two children and allow for one-on-one time with each therapist as well as some shared time altogether. Our SLT & OT assesses each child in their respective areas, and give advice and recommendations with ideas on how to improve their skills and teach parents how to help their child with their next stage of development. The clinics are tailored the to meet each individual’s needs and a therapeutic programme will be developed which can be put in place at home, at their nursery or at school as appropriate.

The therapy is designed to be supportive and is expected to be ongoing with follow-up appointments every four to six months to maintain steady progress under expert eyes. At the end of the sessions parents receive a written summary of the work covered in the sessions, with the targets and recommendations for further work at home.
 

“A great source of intensive and tailored advice on both the learning development and the physical development. Great practical advice, useful materials to use at home and ideas for how to continue development.”


Click here to fill out the Referral form

Further Appointment Information


Prior to receiving an appointment for the EIG’s and Buddy-Up Sessions, our therapists will contact parents for a telephone call to gain a fuller understanding of where your child needs support. This helps us to plan the clinics and for families to gain the maximum therapy from their sessions.


Parents are contacted on return of the Referral form and an appointment will be arranged. Spaces are limited and we reserve the right to withdraw or review the frequency of therapy but will discuss this with parents.  All parents need to sign our Data Protection and information sharing policy.

Referral Information Form


Please fill in the details in the referral form below.



Contact Information



Speech & Language Therapy Information



Occupational Therapy Information



Therapy Priorities



Communication



Co-ordination



Further Information

Therapy Explained


Speech & Language

Speech and Language is an area of difficulty for most children with Down syndrome and though often keen to communicate and interested in things going on around them from very early on, language skills are usually delayed. We work to improve these core elements with our specially targeted interventions which can be started from infancy and continue throughout their childhood.
 

”The advice, information and support provided by the practitioners has been so helpful and very easy to follow. we feel so welcome, my son loves the sessions and, most importantly, it works.”


Parents can raise specific concerns about their child’s progress; these may range from toileting, turn taking, waiting, communication. The therapists work collaboratively with parents and their child to come up with a program of activities to practice over a few months.
 


 

Occupational Therapy

Most babies with Down syndrome have low muscle tone and loose ligaments which can be a challenge to early motor development and issues often relate to health and growth development. In our sessions, we work with the child on the foundation gross and fine motor skills such as; feeding, sitting, crawling, postural control, balance and standing. This can make a huge impact on their overall development and supports them in gaining their independence.
 

”…the benefits of seeing a practical session so that we can try to replicate this help at home is fantastic.”
 


 

Clinic Session Photos

“The quality of input is excellent, the materials shared are brilliant and really useful –
it’s simply really top quality expertise that it is extremely hard otherwise to find and to tap into.”

About The Lejeune Clinic


“…Every patient is my brother.”


The Lejeune Clinic was set up in 1995 by Dr Margret White and the Guild of Catholic Doctors and was the first center in the UK to provide specialist assessment and therapy for children with Down syndrome and their families. For over twenty years the clinic followed the work of Professor Jerome Lejeune, the French geneticist who in 1959 discovered in the link between Down syndrome and Chromosome 21. Professor Lejeune pioneered a clinic in Paris for the care, research and treatment of children with Down syndrome and devoted his life to working for them and their families and saw thousands of children from across the world at his clinics. 

Today, medical services provided in the UK for children with Down syndrome has improved enormously and there is a network of doctors who are members of the Down Syndrome Medical Interest Group who share information with health care professionals involved in the treating and managing of the syndrome and so families can now access support locally. 

At the Lejeune Clinic, we continue to support families by providing essential Speech & Language Therapy and Occupational Therapy Sessions. We run clinics which are jointly led by two specialist therapists in Speech & Language and Occupational Therapy from birth to 18 years old. 

Our Clinics focus on developing the child’s language and communication as well as their physical development. The sessions provide interventions with advice and recommendations for parents and carers on how to help their child with their next stage of development together with practical skills and activities which can be incorporated into their everyday lives.

This shared intervention is proven to have excellent outcomes for the children and enables parents to learn more about their child’s condition and how to practically help them and give them the best start in life. 

 

Our Lead Therapists


Speech & Language Therapist

Jennifer Warwick

 

 

Since training as a speech and language therapist in 2003 Jennifer has worked across a range of health, education and charity contexts providing assessment and intervention for children and young people with neurodevelopmental disorders and complex communication needs. She has extensive experience working with children, young people and babies with Down Syndrome. Jennifer works collaboratively with parents and educators to support and empower them in developing communication and interaction skills in children and young people Jennifer volunteers as a Research Champion and Advisor for ASD and social communication disorders for the Royal College of Speech and Language Therapists. She is committed to research and best practice evidenced through completion of an MSC in Human Communication at City University, London in 2013. Jennifer has an interest in the development of social cognition in young children and is joint author of the ‘Early Sociocognitive Battery.’

I have undertaken specific training in the following assessment and therapy approaches:

  • Autism Diagnostic Observation Schedule
  • SCERTS approach
  • Picture Exchange Communication System
  • Makaton
  • Hanen - It takes two to talk and More than words
  • Management of eating and drinking difficulties in children
  • Solution focused brief therapy
  • Clinical supervision training
  • Intensive Interaction
  • Bobath for Speech and Language therapists
 
 

 

Occupational Therapist

Louise Vassallo

 

 

A Graduate from Oxford Brookes University in 2002 with a BSc Hons in Occupational Therapy, Louise has worked within the NHS for the past 16 years. In 2006 Louise began to specialize in Pediatrics and has been providing complex assessments and intervention since then in a variety of settings. Louise has worked with the Lejeune Clinic since 2009. She has been supporting the charity, and assisting the families in their understanding of the occupational therapy needs of children with Down Syndrome by promoting a client-centered problem solving approach.

Louise has a particular interest in neurodevelopmental disorders and is recognized as an advanced Bobath practitioner, providing in-depth knowledge to normal and abnormal development. She is committed to maintaining up to date evidence based practice and this is reflected in her ongoing post graduate training which includes qualifications in Sensory Integration levels 1-3, becoming a recognized practitioner in the delivery of the Cognitive Orientation to Occupational Therapy, in the SOS approach to feeding, and in the administration of the Bayley scales of Infant and Toddler assessment tool.

 

 

Contact Information


The Lejeune Clinics Are Held At

London Children’s Practice

1A Queripel House
Duke of York Square
Sloane Square
London
SW3 4LY


Registered Charity No. 1063847

Email: Enquiries@lejeuneclinic.com
 

Directions

Queripel House is next door to Partridges, a large delicatessen, and opposite the Saatchi gallery.

The nearest tube station is Sloane Square. Several bus routes run through Sloane Square - 11, 19, 22, 137, 170, 211, 319, 360, 452 & C1.

Parking is available at a pay-as-you-go car park in Cheltenham Terrace. Meter parking is available in St Leonard's Terrace, Turks Row and further down Cheltenham Terrace. There is also residential parking at Chelsea and Kensington.
 

Payments

The sessions are subsidised by the Lejeune Clinic for Children with Down Syndrome but do still require parental contribution (See Clinic Costs page). 

Appointments must be paid for in advance of the session to confirm a place: payment details will be provided on confirmation of your booking.
 

Cancelling Appointments

Appointments must be cancelled more than 48 hours before the appointment.
 

If you wish to cancel your appointment, email  Cancellations@lejeuneclinic.com
 

If the appointment is not cancelled within this timeframe, you will be liable to pay the full cost of the appointment.
 

Please be aware that the clinic is not able to help with medical emergencies – for these you should contact NHS 111, your GP or local Accident & Emergency department.

Facebook